Thank you to everyone who attended and made it a very positive and enjoyable day

photo (1)


Pre-registration and Pre-payment are NOT required and can be done on the day.
Joseph’s Goal will confirm the day’s agenda and timings shortly and will post the information on this website.

Joseph’s Goal UK NKH Conference is taking place on Saturday 23rd June at the Hilton in Manchester, Deansgate.

The Day Conference is for families of children suffering from NKH and its aim is to give an update on the latest research into NKH to find better treatments and eventually a cure.

The world’s leading researchers will give presentations, Dr Johan Van Hove, of the University of Colorado (Left), Dr Kasturi Haldar, of the University of Notre Dame, Chicago (Middle) and Dr Nick Greene, of the University College London Great Ormond Street Institute of Child Health (Right).


The Conference is also a great opportunity to meet with and chat to other parents with children suffering from NKH, and exchange experiences and ideas and ways of coping.

The date of the event is Saturday 23rd June and the venue is:

Hilton Manchester Deansgate
Beetham Tower
303 Deansgate
M3 4LQ

Rooms for Friday, 22nd June can be booked for £125 (reduced from £219) through:

Rebecca Taylor, C & E Sales Manager. Please contact her on 0161 870 1646 and quote Code “GJOEA” to benefit from the discount. (If you try to book through any other hotel number or the website, the Code may not be recognised).

There is an NCP car park adjacent to the Hotel, and 15% discount can be arranged through the Hotel.

The order of the day is TBC, but will include Tea/Coffee/Pastries on arrival, mid-morning and mid-afternoon, plus a Buffet Lunch.

We are asking for a donation of £10 per adult for the whole package.
Payment can be made to Emma on the day, or by bank transfer online to:

Bank: NatWest

Account name: Joseph’s Goal

Sort code: 60-14-34

Account number: 58126031

Please use the reference “Conference and your name” to identify your payment.